From Pain to Mapping: How the Right Diagnosis Can Change Life With Endometriosis A reflection for patients — anywhere in the world

Endometriosis is not “bad cramps.” It’s not “stress.” And it is never “normal.” It is a chronic inflammatory disease where endometrial-like tissue grows outside the uterus, sometimes invading the bowel, bladder, ureters, and even pelvic nerves. More than 190 million women worldwide live with it — and many spend years being dismissed or misdiagnosed. 🌍 …

Endometriosis is not “bad cramps.”

It’s not “stress.”

And it is never “normal.”

It is a chronic inflammatory disease where endometrial-like tissue grows outside the uterus, sometimes invading the bowel, bladder, ureters, and even pelvic nerves.

More than 190 million women worldwide live with it — and many spend years being dismissed or misdiagnosed.

🌍 When your body screams and no one listens

Endometriosis shows up in many ways, often far beyond the reproductive system:

severe menstrual pain

chronic pelvic pain between periods

rectal pain or bleeding with bowel movements

constipation, diarrhea, bloating

pain with intercourse

urinary pain or blood in urine

crushing fatigue

infertility or pregnancy loss

Most patients wait 7 to 10 years for a correct diagnosis.

That delay has physical, emotional, social, and professional consequences.

And every year without answers is a year without quality of life.

🏥 When the wrong surgery makes everything harder

Surgery, when done correctly, can transform life with endometriosis.

But when it is done poorly — or without proper planning — it often causes more harm than good.

A non-specialist surgery can:

❌ leave active disease behind

❌ create painful adhesions (scar tissue)

❌ injure bowel, bladder, or nerves

❌ increase pain and fatigue

❌ and make future surgery far more complex

In endometriosis, the first surgery is the most important surgery.

Because every incomplete procedure:

distorts anatomy

removes surgical planes

increases complication risk

and limits options for fertility preservation and organ-sparing techniques

This is why global centers insist:

👉 Endometriosis must be treated by surgeons who specialize in it.

🔬 Mapping the disease: see it before you treat it

Modern care has evolved.

We are no longer in the era of “exploratory laparoscopy.”

Today, accurate mapping before surgery is standard in expert centers.

Key tools include:

📌 Expert transvaginal ultrasound

Designed to evaluate:

deep infiltrating nodules

uterosacral ligament involvement

frozen pelvis or obliterated cul-de-sac

endometriomas

📌 Pelvic MRI with endometriosis protocol

Capable of detecting:

intestinal and rectosigmoid involvement

bladder or ureter infiltration

parametrium and pelvic nerve compromise

📌 Full clinical and functional assessment

Because you don’t operate a scan —

you operate a whole person with symptoms, goals, and a life.

Mapping means safer surgery, fewer complications, and fewer repeat procedures.

🤝 A full-body disease requires a full-team approach

Endometriosis does not respect anatomical boundaries.

That’s why expert care should include a coordinated team, not isolated specialists handing off a patient like a file.

An ideal surgical team may include:

gynecologic surgeon specializing in endometriosis

colorectal surgeon for bowel disease

urologist when bladder/ureters are involved

anesthesiology familiar with chronic pain biology

gastroenterology and nutrition

mental health support — because trauma is real

This multidisciplinary model is used worldwide —

from Australia and Europe to the US and Latin America —

including advanced centers like EndoGlobal Group.

🌎 EndoGlobal Group: global expertise for a global disease

Endometriosis is a worldwide challenge:

delayed diagnosis everywhere

unnecessary surgeries everywhere

women dismissed everywhere

This is why networks like EndoGlobal Group exist.

Our mission is to provide:

🔬 accurate diagnosis and detailed imaging

✂ minimally invasive, organ-preserving surgery

👥 multidisciplinary treatment in one coordinated plan

🌿 patient-centered care focused on restoring quality of life

We believe in science.

We believe in mapping before operating.

And we believe every woman deserves the best care — not just the care that happens to be nearby.

✨ A message for you

If you are reading this, know this clearly:

💛 Your pain is real

💛 You are not exaggerating

💛 You are not alone

💛 And your life still has possibility and hope

Endometriosis can be treated safely and effectively when:

✔ the diagnosis is correct

✔ imaging is done properly

✔ surgery is performed by experts

✔ and the whole body (and mind) is supported

This is what we fight for at EndoGlobal Group —

🌿 excellence + mapping + skill + humanity.

No woman should suffer in silence.

And no woman should ever be told her pain is “normal.”

📚 Brief Scientific References

ESHRE Guideline on Endometriosis (2022)

ACOG Practice Bulletin

Guerriero & Bazot — Imaging for deep endometriosis

Chapron & Roman — Surgical errors and reoperations

WHO — Global prevalence figures